Monday, March 2, 2009

Duchenne Muscular Dystrophy

Ekceli dah lama me nak post this issue… tapi tak terbuat2….

I’m still searching primary school for imad… my first choice… sek keb taman melawati.. coz kat situ ada kelas khas…. But I just get to know that sekolah tu dah ramaiii sgt kanak2 istimewa… n I got to know Sekolah Taman Permata pun dah ada kelas khas….so am still finding a suitable time nak pergi survey n meet up with the school teacher.

Apa yg masih bermain difikiran saya ialah… mengenai report doctor ke atas imad….his disability is fall under fizikal… n itulah yg doctor tulis pun….. tapi doctor ada tick sekali…. Mental retardation…

Benda ini bermain2 di fikiran saya….susah nak faham kadang2.. until i found this article.... see below....

The different types of muscular dystrophy affect different sets of muscles and result in different degrees of muscle weakness.

Duchenne muscular dystrophy is the most common and the most severe form of MD. It affects about 1 out of every 3,500 boys. (Girls can carry the gene that causes the disease, but they usually have no symptoms.) This form occurs because of a problem with the gene that makes dystrophin. Without this protein, the muscles break down and a child becomes weaker.

In cases of Duchenne muscular dystrophy, symptoms usually begin to appear around age 5, as the pelvic muscles begin to weaken. Most kids with this form need to use a wheelchair by age 12. Over time, their muscles weaken in the shoulders, back, arms, and legs.

Eventually, the respiratory muscles are affected, and a ventilator is required to assist breathing. Kids who have Duchenne MD typically have a life span of about 20 years.

Although most kids with Duchenne muscular dystrophy have average intelligence, about one-third of them experience learning disabilities and a small number have mental retardation.

While the incidence of Duchenne is known, it's unclear how common other forms of MD are because the symptoms can vary so widely between individuals. In fact, in some people the symptoms are so mild that the disease goes undiagnosed.

And apa yg mula bermain2 di fikiran saya… adakah anak saya tergolong dalam golongan yang sedikit itu???? Hmmm hanya ALLAH yang tahu perasaan saya ketika ini…..and I still keep this to myself….don’t have courage to tell ayah….


Neasuci said...

pasal mental retardation tu... I doubtlah Eta. Dr dah buat proper evaluation ke? Retardation & learning disabilities are two different things. Imad kan paham instructions kan? Whatever it is, please be strong for your children's sake. You and Imad are in my prayers, insya Allah.

Eta said...

thanks nik... yes i have to be strong for him...
evaluation??? kalau u tgk cara dorang buat evaluation tu pun mcm entahlah tak tau nak ckp.... biarlah, whatever it is.. i have to work hard... berusaha dan tawakkal pada ALLAH...
tadi i call one of the ppd... mula2 dari semalam takde org angkat phone.. peh tu i call balik jpn... dia kata apa kata u cuba fax n tulis... 'boleh tak angkat telepon'.. boleh?????
i tried... ada org angkat.. tapi person in charge lak takde.. n tak tau bila masuk.. n tak tau la segala2 yg i tanya.. document apa yg perlu... haiiii makes my blood goes upstairs!!!!!


k.eita dear... berat mata memandang berat lagi bahu yg memikul.. May God give u n family extra strenght to carry on n simplify things for you.. my prayers are always with u n imad.. take care sis