Monday, June 28, 2010

Zoo visit with MRDS and KIWANIS

Last saturday, we went to the zoo with MRDS and Kiwanis group.
Only 7 families join the visit and sadly none of them having DMD child.
tapi tak pela.. at least i get to know other family as well, met little adam yg having PWS (Prader Willi Syndrome), sha with CP, hui yee with several disabilities, one chinese boy which i can't recall his name yg mengalami tulang rapuh, his age is 8 but lagi kecik dari imad, mardiana with affan disease (mind the spelling) and yg 2 lagi, Indian families which their doter and boy dlm stroller n wheelchair I tak sempat nak beramah mesra...

Met Juliana, Anna and Kathlin from MRDS, also Noel, Jessy and Clarence from Kiwanis, actually ada lagi from Kiwanis but i can't get their names....
All of them are so friendly, and each of them has been assigned to one family each. Kathlin has been assigned to walk with us, muda lagi orangnya, keje part time kat MRDS and now tgh proceed with her master majoring in Genetic. She said compare to other deseases, DMD tak ler berapa rare sgt, cuma orang selalu kept things within themselves aje, maklumla its all about genetic (keturunan)... masa dia ckp nih.. i was like.. pap!!!! cam something yg sedarkan i, yeah its genetic, n saya pulak lebih2 war2kan tak tentu hala, cerita sana sini, did not really care that slowly this thing will hurt us, esp for my doters.... masa jalan2 kat zoo tuh takde la rasa apa2 but when i keep on thinking bila balik rumah... i kesian sgt2 kat anak2 i....
apa la yg aku dah buat nih.....am i doing the right thing now?? should i or shouldn't i publish about this DMD story, is it okay for me to blog it out or should i stop... now it hurts me... really hurts me... huhu... tak tau nak ckp mcm mana.. but what i feel now...mcm2 rasa ada, sebak, putus asa, menyesal, nak menangis pun ada....

ok back to zoo story, so far dorang impressed coz imad still can walk.. alhamdulilah.. we only stop kat one pit stop utk rehat when imad complaint sakit kaki.. the rest dia okay aje, mula2 tu mmg nak bawak stroller tapi mr. ayah pulak malas...
i suka tgk adam... this little boy buat hal dia aje, he is 2 1/2 yrs old and having PWS... dia anak bongsu dlm 3 adik beradik.. tak silap penyakit dia nih, takde rasa kenyang.. so he will eat n eat n eat.. hehe.. kenala mak n ayah dia control... itu sbb masa kat zoo tuh, dia asik la mengunyah.. hehe.. buat he is smart...

sha CP... nothing more that she can do... tapi dia suka rabbit... bila tgk rabbit.. kuat dia gelak... n i can see her mother sayang sgt2 kat dia, layan dia lembut2 aje, dari appearance dia pun leh agak.. dgn ribbonnya, dgn kasut n stokinnya... langit n bumi dengan saya yg kasar nih...

mardiana affan (i still can't get the correct spelling of the disease), tapi according to kathlin penyakit mardiana nih tulang dia akan memanjang and ada heart problem..

overall i tgk budak2 tu semua enjoy dengan lawatan ke zoo nih.. according to noel (ex president kiwanis USJ), mmg kiwanis usj adopted mrds.. so after nih Insya allah there will be a lot more activities and they invite me to join their meeting.. tapi tu la kat USJ la pulak...
tapi byk jgk info yg i dapat, n happy sbb get to know others.

we end the lawatan at 1pm.. lunch kat rest kat dlm zoo tuh, n ada prize giving... masa nih masing2 dah letih... sapa nak continue.. dorang continue la... like us, kena balik sbb my neighbour buat kenduri kawin anak dia... dpn rumah aje...

imad was soo happy tapi dia tak ler bersosial dgn budak2 tuh, sbb dia pun mcm takut2... cuma he makes friends with adam... anak2 suka sgt ngan adam...

nanti senang2 i upload la gambo ke zoo tu ye.... itu pun kalau ada mood... m now in my mood swing... swing swang swung........

1 comment:

Kay said...

Be strong (sob sob sob.. huhuhu)