Monday, February 27, 2012

Support Group


Last three weeks mcm2 benda jadi… 

Ayah yg outstation on 9th Feb came back safely on 17th Feb.. alhamdulilah… legaaa sgt2… 

Lots of things to catch up with him and also with all imad’s appointments.
Within that week jugak.. got to know few new friends yang similar penyakit mcm imad… ada di KL, ada di Air hitam Johor, Pasir Gudang Johor and Taiping perak… but none of them Duchenne. They just had Muscular Dystrophy.

There is support group in fb created by Fazz Fadhilah, which is also suffering from Muscular Dystrophy. He is now wheelchair bound and now running a campaign on Muscular Dystrophy Awareness. Alhamdulilah rasa lega jugak ada support group, at least boleh bertukar2 pendapat, dpt info n macam2 lagi.

And Yesterday we met one uncle kat Shah Alam, also suffering from MD… he suggested one alternative medication for imad.. the way he stand, the way he get himself get up from the chair is exactly like imad… dia kata kena banyak banyak sabar…lagi2 bila dia tgk imad memang dah tak boleh jalan..

And today pulak appointment with CDC HUKM.. byk jugak info yg dapat.. alhamdulilah.. from what we observe and also from the therapist.. imad mmg making progress slowly in learning.. Cuma dia more on problem solving, not like other kids yg boleh membaca, mengira.. he is more to picture memory.

Takpe la imad.. ibu redha Cuma ibu nak abang usaha, dan ibu yakin Insya ALLAH.. satu hari nanti imad pasti boleh membaca… 

Insya ALLAH this year ibu will work out on alternative medication lebih lagi.. 

Semoga dipermudahkan perjalanan hidup kita Ameen…